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news 2020
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Title
Modified Date
Hits
COVID-19 and Rare Diseases
18 December 2020
13340
Slovenia rare disease registry
07 October 2020
13716
ERN-EuroBloodNet’s
07 October 2020
13781
ISTH President 2022-2024
07 October 2020
13230
FDA register to collect information from rare disease community
04 August 2020
13378
FAIRification of patient registries
04 August 2020
13515
rare diseases in India
04 August 2020
13448
IthaScore, a gene-ranking metric for haemoglobinopathy-specific phenotypes
26 June 2020
13286
COVID-19 & Rare Diseases
14 May 2020
13342
ECRD 2020
14 May 2020
13363
Interview with new EAHAD President
24 April 2020
12855
Cancellation of the WFH 2020 World Congress
09 April 2020
12691
WFH Webinar: Bleeding Disorders and COVID-19
09 April 2020
12454
ISTH 2020 Congress Meeting Cancellation
09 April 2020
12429
ISTH Appoints Flora Peyvandi as President for 2022-2024
18 February 2020
12767
eahad2020
12 February 2020
12948
How many rare diseases are there?
18 January 2020
13101
Implementation of integrated care for rare disease patients
18 January 2020
12285
Increasing our Understanding of Plasminogen Deficiency
30 January 2020
12619
Japan: Elaboration of a data integration platform for rare disease research
18 January 2020
12404
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