news 2023

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Title Modified Date Hits
Registries Symposium 2024 09 January 2024 33999
Artificial intelligence and rare diseases 30 November 2023 29800
Neurological Complications Associated with Hereditary Bleeding Disorders 26 October 2023 32935
A creative approach to managing a case of haemophilia A 26 October 2023 31899
ISTH draft hemophilia guideline 23 October 2023 34223
CHESS II study 16 October 2023 34227
Accessibility of services for neuromuscular disorders in Zambia 16 October 2023 22435
CDISC Data Standards for Rare Disease 12 October 2023 33993
2023 NORD Breakthrough Summit 12 October 2023 33748
ERN 5th Progress Meeting 29 September 2023 28738
Bleeding patients on extracorporeal membrane oxygenation 25 September 2023 28596
12 BIC Palermo 11 September 2023 36042
State of the art for ISTH Society 28 June 2023 47548
The Impact of Artificial Intelligence in the Odyssey of Rare Diseases 23 June 2023 36571
Diagnosis of von Willebrand disease 01 June 2023 30416
Innovative Health Initiative 16 May 2023 34948
US: The future of market exclusivity 16 May 2023 40876
solve-rd 16 May 2023 41556
12 BIC International Conference 11 September 2023 39468
Online registry building: Guidance for patient organisations 28 April 2023 37819
Australia: Moving towards a more sustainable rare disease workforce 28 April 2023 37071
ERN-EuroBloodNet: New online educational program 28 April 2023 32301
EuroBloodNet: Sickle Cell Disease research 28 April 2023 34866
ISTH 2023 Montreal 13 April 2023 44108
haemophilia: a breakthrough drug with many unknowns 05 April 2023 41939
von Willebrand factor 05 April 2023 33516
research priorities for ultra-rare inherited bleeding disorders 18 March 2023 42309
costs of rare diseases in Hong Kong 15 March 2023 35831
EuroBloodNet 15 March 2023 40936
ERKNet: New patient website 15 March 2023 39556
COVID-19 and coagulopathy 13 March 2023 35187
Rare Disease Day 2023 28 February 2023 34416
Care4Rare Canada 15 February 2023 43206
Mild and Moderate Hemophilia A: Neglected Conditions, Still with Unmet Needs 14 February 2023 33524
Hemorrhagic and thrombotic adverse events associated with emicizumab 01 February 2023 32875
Involvement of the contact pathway in COVID-19 coagulopathy 04 January 2023 36093
ISTH Bangkok 2024 27 April 2023 44921
EAHAD 2023 16 December 2022 40922
EJP RD: New video on rare diseases for ASHG TV 02 November 2022 31722
RDDC & NORD announce new partnership 02 November 2022 32972