news 2023

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Title Modified Date Hits
Registries Symposium 2024 09 January 2024 5679
Artificial intelligence and rare diseases 30 November 2023 5794
Neurological Complications Associated with Hereditary Bleeding Disorders 26 October 2023 5871
A creative approach to managing a case of haemophilia A 26 October 2023 5804
ISTH draft hemophilia guideline 23 October 2023 5900
CHESS II study 16 October 2023 5809
Accessibility of services for neuromuscular disorders in Zambia 16 October 2023 5704
CDISC Data Standards for Rare Disease 12 October 2023 5812
2023 NORD Breakthrough Summit 12 October 2023 5782
ERN 5th Progress Meeting 29 September 2023 5854
Bleeding patients on extracorporeal membrane oxygenation 25 September 2023 5905
12 BIC Palermo 11 September 2023 9924
State of the art for ISTH Society 28 June 2023 10511
The Impact of Artificial Intelligence in the Odyssey of Rare Diseases 23 June 2023 10331
Diagnosis of von Willebrand disease 01 June 2023 10756
Innovative Health Initiative 16 May 2023 11111
US: The future of market exclusivity 16 May 2023 11467
solve-rd 16 May 2023 10961
12 BIC International Conference 11 September 2023 11776
Online registry building: Guidance for patient organisations 28 April 2023 11655
Australia: Moving towards a more sustainable rare disease workforce 28 April 2023 11566
ERN-EuroBloodNet: New online educational program 28 April 2023 11413
EuroBloodNet: Sickle Cell Disease research 28 April 2023 8359
ISTH 2023 Montreal 13 April 2023 12765
haemophilia: a breakthrough drug with many unknowns 05 April 2023 12800
von Willebrand factor 05 April 2023 12679
research priorities for ultra-rare inherited bleeding disorders 18 March 2023 12987
costs of rare diseases in Hong Kong 15 March 2023 12938
EuroBloodNet 15 March 2023 12961
ERKNet: New patient website 15 March 2023 12797
COVID-19 and coagulopathy 13 March 2023 12899
Rare Disease Day 2023 28 February 2023 13701
Care4Rare Canada 15 February 2023 13172
Mild and Moderate Hemophilia A: Neglected Conditions, Still with Unmet Needs 14 February 2023 12943
Hemorrhagic and thrombotic adverse events associated with emicizumab 01 February 2023 13031
Involvement of the contact pathway in COVID-19 coagulopathy 04 January 2023 13676
ISTH Bangkok 2024 27 April 2023 14086
EAHAD 2023 16 December 2022 13955
EJP RD: New video on rare diseases for ASHG TV 02 November 2022 10309
RDDC & NORD announce new partnership 02 November 2022 7650