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clip
news 2023
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Title
Modified Date
Hits
Registries Symposium 2024
09 January 2024
5679
Artificial intelligence and rare diseases
30 November 2023
5794
Neurological Complications Associated with Hereditary Bleeding Disorders
26 October 2023
5871
A creative approach to managing a case of haemophilia A
26 October 2023
5804
ISTH draft hemophilia guideline
23 October 2023
5900
CHESS II study
16 October 2023
5809
Accessibility of services for neuromuscular disorders in Zambia
16 October 2023
5704
CDISC Data Standards for Rare Disease
12 October 2023
5812
2023 NORD Breakthrough Summit
12 October 2023
5782
ERN 5th Progress Meeting
29 September 2023
5854
Bleeding patients on extracorporeal membrane oxygenation
25 September 2023
5905
12 BIC Palermo
11 September 2023
9924
State of the art for ISTH Society
28 June 2023
10511
The Impact of Artificial Intelligence in the Odyssey of Rare Diseases
23 June 2023
10331
Diagnosis of von Willebrand disease
01 June 2023
10756
Innovative Health Initiative
16 May 2023
11111
US: The future of market exclusivity
16 May 2023
11467
solve-rd
16 May 2023
10961
12 BIC International Conference
11 September 2023
11776
Online registry building: Guidance for patient organisations
28 April 2023
11655
Australia: Moving towards a more sustainable rare disease workforce
28 April 2023
11566
ERN-EuroBloodNet: New online educational program
28 April 2023
11413
EuroBloodNet: Sickle Cell Disease research
28 April 2023
8359
ISTH 2023 Montreal
13 April 2023
12765
haemophilia: a breakthrough drug with many unknowns
05 April 2023
12800
von Willebrand factor
05 April 2023
12679
research priorities for ultra-rare inherited bleeding disorders
18 March 2023
12987
costs of rare diseases in Hong Kong
15 March 2023
12938
EuroBloodNet
15 March 2023
12961
ERKNet: New patient website
15 March 2023
12797
COVID-19 and coagulopathy
13 March 2023
12899
Rare Disease Day 2023
28 February 2023
13701
Care4Rare Canada
15 February 2023
13172
Mild and Moderate Hemophilia A: Neglected Conditions, Still with Unmet Needs
14 February 2023
12943
Hemorrhagic and thrombotic adverse events associated with emicizumab
01 February 2023
13031
Involvement of the contact pathway in COVID-19 coagulopathy
04 January 2023
13676
ISTH Bangkok 2024
27 April 2023
14086
EAHAD 2023
16 December 2022
13955
EJP RD: New video on rare diseases for ASHG TV
02 November 2022
10309
RDDC & NORD announce new partnership
02 November 2022
7650
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