RDI is partnering with the EURORDIS Rare Barometer Survey project to launch the Global Survey on the Journey to Diagnosis for Persons Living with a Rare Disease. This survey aims to identify factors that influence the process of obtaining a diagnosis and obstacles along the journey. The survey is available in 26 languages. Patients, parents, siblings or other family members, patient representatives and carers are invited to take part to the survey in order to collect relevant responses at the national level and for specific disease areas, while developing an image of the diagnostic journey for the global community.