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Title
Modified Date
Hits
World Orphan Drug Congress 2021
17 November 2021
12511
The de novo FAIRification process of a registry for vascular anomalies
13 November 2021
12128
Patient preferences for gene therapy in haemophilia
21 October 2021
12001
Role of ADAMTS13, VWF and F8 genes in deep vein thrombosis
21 October 2021
11977
11th BIC International Conference
15 September 2021
12918
Share4Rare
16 June 2021
13254
EJP-RD : Online course on diagnosing rare diseases from the clinic to research and back
16 June 2021
13007
Data Standards Strategy survey
10 May 2021
12139
Thrombotic microangiopathies webinars
10 May 2021
11829
EAHAD 2021
11 February 2021
13231
EJP-RD call for innovation
22 January 2021
12630
Rare Digital Disease Day 2021 in Europe
18 December 2020
15232
Rare Digital Disease Day 2021
16 February 2021
13454
Rare Disease Day 2021
16 February 2021
9166
EJP RD Final Conference
European Health Data Space
NGS in developing countries
Impact on the validity of D-dimer on anticoagulation
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