news 2014

Display # 
Title Modified Date Hits
Black Pearl Awards EURORDIS 12 October 2017 6106
countdown to Rare Disease Day 2015 22 December 2014 10377
A need for cultural change… 10 December 2014 10605
WHO Public Disclosure of Clinical Trial Results 05 November 2014 10472
EMA: Clinical trial data will be shared 05 November 2014 10627
Automated search tools to retrieve published rare disease cases 05 November 2014 10551
10 Key Principles of RD Registries 05 November 2014 6752
8th BIC 2014 03 October 2014 10888
III International EPIRARE workshop 18 September 2014 10657
revoking exclusive haemophilia treatment market 18 September 2014 10645
the RD-Connect platform 18 September 2014 10244
Rare Disease Help Lines 01 July 2014 10783
IRDiRC 01 July 2014 11000
Study underscores public demand for rare disease help lines 01 July 2014 10560
reference guide for registry management 17 June 2014 10561
8th Annual Congress EAHAD 2015 17 June 2014 11173
Rare diseases and orphan drug registries 14 May 2014 10383
Computer algorithms for rare disease 14 May 2014 10594
None of us are protected by statistics. 09 May 2014 6710
ICORD 2014 07 May 2014 6733
Establishment of a vasculitis registry in Poland 16 April 2014 10381
Nature: Pediatric requirements in Europe stymie help for hemophilia 19 April 2014 10312
Yale University Open Data Access Project (YODA) 21 February 2014 10370
Next Generation Sequencing 01 February 2014 10099
Rare Disease Day 2014 01 February 2014 10653
Researchers appeal to the British public to share their medical data 01 February 2014 10289
Rare Disorders in Norway 01 February 2014 10659
Rare Diseases in Brazil 01 February 2014 10311
recombinant Factor IX Fc 01 February 2014 10000
Welcome to the Rare Coagulation Disorders Resource Room! 18 January 2014 8378
new website 14 January 2014 5414
ECRD 2014 16 April 2014 8822