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news 2023
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Title
Modified Date
Hits
Registries Symposium 2024
09 January 2024
1069
Artificial intelligence and rare diseases
30 November 2023
1169
Neurological Complications Associated with Hereditary Bleeding Disorders
26 October 2023
1231
A creative approach to managing a case of haemophilia A
26 October 2023
1231
ISTH draft hemophilia guideline
23 October 2023
1295
CHESS II study
16 October 2023
1178
Accessibility of services for neuromuscular disorders in Zambia
16 October 2023
1082
CDISC Data Standards for Rare Disease
12 October 2023
1190
2023 NORD Breakthrough Summit
12 October 2023
1160
ERN 5th Progress Meeting
29 September 2023
1255
Bleeding patients on extracorporeal membrane oxygenation
25 September 2023
1244
12 BIC Palermo
11 September 2023
4393
State of the art for ISTH Society
28 June 2023
4780
The Impact of Artificial Intelligence in the Odyssey of Rare Diseases
23 June 2023
4687
Diagnosis of von Willebrand disease
01 June 2023
5058
Innovative Health Initiative
16 May 2023
5475
US: The future of market exclusivity
16 May 2023
5579
solve-rd
16 May 2023
5272
12 BIC International Conference
11 September 2023
5999
Online registry building: Guidance for patient organisations
28 April 2023
5866
Australia: Moving towards a more sustainable rare disease workforce
28 April 2023
5787
ERN-EuroBloodNet: New online educational program
28 April 2023
5659
EuroBloodNet: Sickle Cell Disease research
28 April 2023
3242
ISTH 2023 Montreal
13 April 2023
6720
haemophilia: a breakthrough drug with many unknowns
05 April 2023
6741
von Willebrand factor
05 April 2023
6744
research priorities for ultra-rare inherited bleeding disorders
18 March 2023
6998
costs of rare diseases in Hong Kong
15 March 2023
7011
EuroBloodNet
15 March 2023
6970
ERKNet: New patient website
15 March 2023
6833
COVID-19 and coagulopathy
13 March 2023
6836
Rare Disease Day 2023
28 February 2023
7726
Care4Rare Canada
15 February 2023
7240
Mild and Moderate Hemophilia A: Neglected Conditions, Still with Unmet Needs
14 February 2023
7051
Hemorrhagic and thrombotic adverse events associated with emicizumab
01 February 2023
7140
Involvement of the contact pathway in COVID-19 coagulopathy
04 January 2023
7663
ISTH Bangkok 2024
27 April 2023
8077
EAHAD 2023
16 December 2022
8002
EJP RD: New video on rare diseases for ASHG TV
02 November 2022
4987
RDDC & NORD announce new partnership
02 November 2022
2941
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