news 2023

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Title Modified Date Hits
Registries Symposium 2024 09 January 2024 1069
Artificial intelligence and rare diseases 30 November 2023 1169
Neurological Complications Associated with Hereditary Bleeding Disorders 26 October 2023 1231
A creative approach to managing a case of haemophilia A 26 October 2023 1231
ISTH draft hemophilia guideline 23 October 2023 1295
CHESS II study 16 October 2023 1178
Accessibility of services for neuromuscular disorders in Zambia 16 October 2023 1082
CDISC Data Standards for Rare Disease 12 October 2023 1190
2023 NORD Breakthrough Summit 12 October 2023 1160
ERN 5th Progress Meeting 29 September 2023 1255
Bleeding patients on extracorporeal membrane oxygenation 25 September 2023 1244
12 BIC Palermo 11 September 2023 4393
State of the art for ISTH Society 28 June 2023 4780
The Impact of Artificial Intelligence in the Odyssey of Rare Diseases 23 June 2023 4687
Diagnosis of von Willebrand disease 01 June 2023 5058
Innovative Health Initiative 16 May 2023 5475
US: The future of market exclusivity 16 May 2023 5579
solve-rd 16 May 2023 5272
12 BIC International Conference 11 September 2023 5999
Online registry building: Guidance for patient organisations 28 April 2023 5866
Australia: Moving towards a more sustainable rare disease workforce 28 April 2023 5787
ERN-EuroBloodNet: New online educational program 28 April 2023 5659
EuroBloodNet: Sickle Cell Disease research 28 April 2023 3242
ISTH 2023 Montreal 13 April 2023 6720
haemophilia: a breakthrough drug with many unknowns 05 April 2023 6741
von Willebrand factor 05 April 2023 6744
research priorities for ultra-rare inherited bleeding disorders 18 March 2023 6998
costs of rare diseases in Hong Kong 15 March 2023 7011
EuroBloodNet 15 March 2023 6970
ERKNet: New patient website 15 March 2023 6833
COVID-19 and coagulopathy 13 March 2023 6836
Rare Disease Day 2023 28 February 2023 7726
Care4Rare Canada 15 February 2023 7240
Mild and Moderate Hemophilia A: Neglected Conditions, Still with Unmet Needs 14 February 2023 7051
Hemorrhagic and thrombotic adverse events associated with emicizumab 01 February 2023 7140
Involvement of the contact pathway in COVID-19 coagulopathy 04 January 2023 7663
ISTH Bangkok 2024 27 April 2023 8077
EAHAD 2023 16 December 2022 8002
EJP RD: New video on rare diseases for ASHG TV 02 November 2022 4987
RDDC & NORD announce new partnership 02 November 2022 2941