news 2014

Display # 
Title Modified Date Hits
Black Pearl Awards EURORDIS 12 October 2017 6233
countdown to Rare Disease Day 2015 22 December 2014 10553
A need for cultural change… 10 December 2014 10786
WHO Public Disclosure of Clinical Trial Results 05 November 2014 10656
EMA: Clinical trial data will be shared 05 November 2014 10812
Automated search tools to retrieve published rare disease cases 05 November 2014 10723
10 Key Principles of RD Registries 05 November 2014 6892
8th BIC 2014 03 October 2014 11066
III International EPIRARE workshop 18 September 2014 10843
revoking exclusive haemophilia treatment market 18 September 2014 10828
the RD-Connect platform 18 September 2014 10415
Rare Disease Help Lines 01 July 2014 10954
IRDiRC 01 July 2014 11181
Study underscores public demand for rare disease help lines 01 July 2014 10747
reference guide for registry management 17 June 2014 10747
8th Annual Congress EAHAD 2015 17 June 2014 11349
Rare diseases and orphan drug registries 14 May 2014 10572
Computer algorithms for rare disease 14 May 2014 10770
None of us are protected by statistics. 09 May 2014 6840
ICORD 2014 07 May 2014 6857
Establishment of a vasculitis registry in Poland 16 April 2014 10559
Nature: Pediatric requirements in Europe stymie help for hemophilia 19 April 2014 10487
Yale University Open Data Access Project (YODA) 21 February 2014 10565
Next Generation Sequencing 01 February 2014 10275
Rare Disease Day 2014 01 February 2014 10842
Researchers appeal to the British public to share their medical data 01 February 2014 10461
Rare Disorders in Norway 01 February 2014 10833
Rare Diseases in Brazil 01 February 2014 10495
recombinant Factor IX Fc 01 February 2014 10174
Welcome to the Rare Coagulation Disorders Resource Room! 18 January 2014 8560
new website 14 January 2014 5571
ECRD 2014 16 April 2014 9002