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news 2020
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Title
Modified Date
Hits
COVID-19 and Rare Diseases
18 December 2020
11623
Slovenia rare disease registry
07 October 2020
12016
ERN-EuroBloodNet’s
07 October 2020
12097
ISTH President 2022-2024
07 October 2020
11552
FDA register to collect information from rare disease community
04 August 2020
11664
FAIRification of patient registries
04 August 2020
11828
rare diseases in India
04 August 2020
11805
IthaScore, a gene-ranking metric for haemoglobinopathy-specific phenotypes
26 June 2020
11572
COVID-19 & Rare Diseases
14 May 2020
11643
ECRD 2020
14 May 2020
11694
Interview with new EAHAD President
24 April 2020
11192
Cancellation of the WFH 2020 World Congress
09 April 2020
10976
WFH Webinar: Bleeding Disorders and COVID-19
09 April 2020
10801
ISTH 2020 Congress Meeting Cancellation
09 April 2020
10812
ISTH Appoints Flora Peyvandi as President for 2022-2024
18 February 2020
11106
eahad2020
12 February 2020
11250
How many rare diseases are there?
18 January 2020
11400
Implementation of integrated care for rare disease patients
18 January 2020
10628
Increasing our Understanding of Plasminogen Deficiency
30 January 2020
10912
Japan: Elaboration of a data integration platform for rare disease research
18 January 2020
10752
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