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clip
news 2023
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Title
Modified Date
Hits
Registries Symposium 2024
09 January 2024
1201
Artificial intelligence and rare diseases
30 November 2023
1314
Neurological Complications Associated with Hereditary Bleeding Disorders
26 October 2023
1363
A creative approach to managing a case of haemophilia A
26 October 2023
1370
ISTH draft hemophilia guideline
23 October 2023
1435
CHESS II study
16 October 2023
1341
Accessibility of services for neuromuscular disorders in Zambia
16 October 2023
1233
CDISC Data Standards for Rare Disease
12 October 2023
1335
2023 NORD Breakthrough Summit
12 October 2023
1312
ERN 5th Progress Meeting
29 September 2023
1396
Bleeding patients on extracorporeal membrane oxygenation
25 September 2023
1378
12 BIC Palermo
11 September 2023
4593
State of the art for ISTH Society
28 June 2023
4973
The Impact of Artificial Intelligence in the Odyssey of Rare Diseases
23 June 2023
4900
Diagnosis of von Willebrand disease
01 June 2023
5243
Innovative Health Initiative
16 May 2023
5665
US: The future of market exclusivity
16 May 2023
5777
solve-rd
16 May 2023
5476
12 BIC International Conference
11 September 2023
6215
Online registry building: Guidance for patient organisations
28 April 2023
6081
Australia: Moving towards a more sustainable rare disease workforce
28 April 2023
6005
ERN-EuroBloodNet: New online educational program
28 April 2023
5883
EuroBloodNet: Sickle Cell Disease research
28 April 2023
3411
ISTH 2023 Montreal
13 April 2023
6932
haemophilia: a breakthrough drug with many unknowns
05 April 2023
6962
von Willebrand factor
05 April 2023
6950
research priorities for ultra-rare inherited bleeding disorders
18 March 2023
7193
costs of rare diseases in Hong Kong
15 March 2023
7200
EuroBloodNet
15 March 2023
7163
ERKNet: New patient website
15 March 2023
7033
COVID-19 and coagulopathy
13 March 2023
7033
Rare Disease Day 2023
28 February 2023
7941
Care4Rare Canada
15 February 2023
7434
Mild and Moderate Hemophilia A: Neglected Conditions, Still with Unmet Needs
14 February 2023
7239
Hemorrhagic and thrombotic adverse events associated with emicizumab
01 February 2023
7326
Involvement of the contact pathway in COVID-19 coagulopathy
04 January 2023
7855
ISTH Bangkok 2024
27 April 2023
8278
EAHAD 2023
16 December 2022
8200
EJP RD: New video on rare diseases for ASHG TV
02 November 2022
5159
RDDC & NORD announce new partnership
02 November 2022
3077
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