news 2023

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Title Modified Date Hits
Registries Symposium 2024 09 January 2024 1201
Artificial intelligence and rare diseases 30 November 2023 1314
Neurological Complications Associated with Hereditary Bleeding Disorders 26 October 2023 1363
A creative approach to managing a case of haemophilia A 26 October 2023 1370
ISTH draft hemophilia guideline 23 October 2023 1435
CHESS II study 16 October 2023 1341
Accessibility of services for neuromuscular disorders in Zambia 16 October 2023 1233
CDISC Data Standards for Rare Disease 12 October 2023 1335
2023 NORD Breakthrough Summit 12 October 2023 1312
ERN 5th Progress Meeting 29 September 2023 1396
Bleeding patients on extracorporeal membrane oxygenation 25 September 2023 1378
12 BIC Palermo 11 September 2023 4593
State of the art for ISTH Society 28 June 2023 4973
The Impact of Artificial Intelligence in the Odyssey of Rare Diseases 23 June 2023 4900
Diagnosis of von Willebrand disease 01 June 2023 5243
Innovative Health Initiative 16 May 2023 5665
US: The future of market exclusivity 16 May 2023 5777
solve-rd 16 May 2023 5476
12 BIC International Conference 11 September 2023 6215
Online registry building: Guidance for patient organisations 28 April 2023 6081
Australia: Moving towards a more sustainable rare disease workforce 28 April 2023 6005
ERN-EuroBloodNet: New online educational program 28 April 2023 5883
EuroBloodNet: Sickle Cell Disease research 28 April 2023 3411
ISTH 2023 Montreal 13 April 2023 6932
haemophilia: a breakthrough drug with many unknowns 05 April 2023 6962
von Willebrand factor 05 April 2023 6950
research priorities for ultra-rare inherited bleeding disorders 18 March 2023 7193
costs of rare diseases in Hong Kong 15 March 2023 7200
EuroBloodNet 15 March 2023 7163
ERKNet: New patient website 15 March 2023 7033
COVID-19 and coagulopathy 13 March 2023 7033
Rare Disease Day 2023 28 February 2023 7941
Care4Rare Canada 15 February 2023 7434
Mild and Moderate Hemophilia A: Neglected Conditions, Still with Unmet Needs 14 February 2023 7239
Hemorrhagic and thrombotic adverse events associated with emicizumab 01 February 2023 7326
Involvement of the contact pathway in COVID-19 coagulopathy 04 January 2023 7855
ISTH Bangkok 2024 27 April 2023 8278
EAHAD 2023 16 December 2022 8200
EJP RD: New video on rare diseases for ASHG TV 02 November 2022 5159
RDDC & NORD announce new partnership 02 November 2022 3077