European Haemophilia Consortium (EHC)
Belgium - AHVH, Association de l'hémophilie-hemofilievereniging (The Belgian Haemophilia Society)
European Platform for Patients' Organizations, Science and Industry (EPPOSI)
Germany - Deutsche Hämophiliegesellschaft (German Haemophilia organization for the fight against bleeding disorders- Bayerische Bluter Beratung (Bleeding disorders information services Bavaria)
Italy - AICE, Associazione Italiana Centri Emofilia (Italian association of Haemophilia Centres)
Italy - Federazione delle Associazioni Emofilici (FedEmo)
Italy Fondazione Paracelso
Switzerland- ProRaris, Alliance Maladies Rares (Rare Diseases alliance)
UK - The Haemophilia Society