news 2014

Display # 
Title Modified Date Hits
Black Pearl Awards EURORDIS 12 October 2017 60061
countdown to Rare Disease Day 2015 22 December 2014 49054
A need for cultural change… 10 December 2014 59456
WHO Public Disclosure of Clinical Trial Results 05 November 2014 62949
EMA: Clinical trial data will be shared 05 November 2014 61321
Automated search tools to retrieve published rare disease cases 05 November 2014 64642
10 Key Principles of RD Registries 05 November 2014 47514
8th BIC 2014 03 October 2014 55049
III International EPIRARE workshop 18 September 2014 62835
revoking exclusive haemophilia treatment market 18 September 2014 60140
the RD-Connect platform 18 September 2014 64167
Rare Disease Help Lines 01 July 2014 66072
IRDiRC 01 July 2014 67412
Study underscores public demand for rare disease help lines 01 July 2014 61136
reference guide for registry management 17 June 2014 64712
8th Annual Congress EAHAD 2015 17 June 2014 54241
Rare diseases and orphan drug registries 14 May 2014 63491
Computer algorithms for rare disease 14 May 2014 66934
None of us are protected by statistics. 09 May 2014 51315
ICORD 2014 07 May 2014 53200
Establishment of a vasculitis registry in Poland 16 April 2014 53634
Nature: Pediatric requirements in Europe stymie help for hemophilia 19 April 2014 52080
Yale University Open Data Access Project (YODA) 21 February 2014 64909
Next Generation Sequencing 01 February 2014 64910
Rare Disease Day 2014 01 February 2014 50035
Researchers appeal to the British public to share their medical data 01 February 2014 57560
Rare Disorders in Norway 01 February 2014 60290
Rare Diseases in Brazil 01 February 2014 56112
recombinant Factor IX Fc 01 February 2014 48078
Welcome to the Rare Coagulation Disorders Resource Room! 18 January 2014 54559
new website 14 January 2014 53939
ECRD 2014 16 April 2014 59126