news 2014

Display # 
Title Modified Date Hits
Black Pearl Awards EURORDIS 12 October 2017 68831
countdown to Rare Disease Day 2015 22 December 2014 57427
A need for cultural change… 10 December 2014 65769
WHO Public Disclosure of Clinical Trial Results 05 November 2014 70858
EMA: Clinical trial data will be shared 05 November 2014 70442
Automated search tools to retrieve published rare disease cases 05 November 2014 70085
10 Key Principles of RD Registries 05 November 2014 55959
8th BIC 2014 03 October 2014 63964
III International EPIRARE workshop 18 September 2014 72066
revoking exclusive haemophilia treatment market 18 September 2014 68052
the RD-Connect platform 18 September 2014 69454
Rare Disease Help Lines 01 July 2014 77503
IRDiRC 01 July 2014 76702
Study underscores public demand for rare disease help lines 01 July 2014 66221
reference guide for registry management 17 June 2014 71273
8th Annual Congress EAHAD 2015 17 June 2014 62931
Rare diseases and orphan drug registries 14 May 2014 71497
Computer algorithms for rare disease 14 May 2014 76148
None of us are protected by statistics. 09 May 2014 60429
ICORD 2014 07 May 2014 62039
Establishment of a vasculitis registry in Poland 16 April 2014 62735
Nature: Pediatric requirements in Europe stymie help for hemophilia 19 April 2014 60105
Yale University Open Data Access Project (YODA) 21 February 2014 73717
Next Generation Sequencing 01 February 2014 74112
Rare Disease Day 2014 01 February 2014 58365
Researchers appeal to the British public to share their medical data 01 February 2014 64569
Rare Disorders in Norway 01 February 2014 69314
Rare Diseases in Brazil 01 February 2014 62743
recombinant Factor IX Fc 01 February 2014 55187
Welcome to the Rare Coagulation Disorders Resource Room! 18 January 2014 62205
new website 14 January 2014 66473
ECRD 2014 16 April 2014 68466