news 2014

Display # 
Title Modified Date Hits
Black Pearl Awards EURORDIS 12 October 2017 26976
countdown to Rare Disease Day 2015 22 December 2014 27444
A need for cultural change… 10 December 2014 31115
WHO Public Disclosure of Clinical Trial Results 05 November 2014 36243
EMA: Clinical trial data will be shared 05 November 2014 31230
Automated search tools to retrieve published rare disease cases 05 November 2014 32771
10 Key Principles of RD Registries 05 November 2014 23342
8th BIC 2014 03 October 2014 29993
III International EPIRARE workshop 18 September 2014 31744
revoking exclusive haemophilia treatment market 18 September 2014 31045
the RD-Connect platform 18 September 2014 32226
Rare Disease Help Lines 01 July 2014 33047
IRDiRC 01 July 2014 34918
Study underscores public demand for rare disease help lines 01 July 2014 36022
reference guide for registry management 17 June 2014 32523
8th Annual Congress EAHAD 2015 17 June 2014 29312
Rare diseases and orphan drug registries 14 May 2014 31830
Computer algorithms for rare disease 14 May 2014 33024
None of us are protected by statistics. 09 May 2014 24440
ICORD 2014 07 May 2014 25928
Establishment of a vasculitis registry in Poland 16 April 2014 28449
Nature: Pediatric requirements in Europe stymie help for hemophilia 19 April 2014 27851
Yale University Open Data Access Project (YODA) 21 February 2014 32748
Next Generation Sequencing 01 February 2014 31943
Rare Disease Day 2014 01 February 2014 28238
Researchers appeal to the British public to share their medical data 01 February 2014 35716
Rare Disorders in Norway 01 February 2014 31185
Rare Diseases in Brazil 01 February 2014 29860
recombinant Factor IX Fc 01 February 2014 27252
Welcome to the Rare Coagulation Disorders Resource Room! 18 January 2014 27465
new website 14 January 2014 25363
ECRD 2014 16 April 2014 30398