news 2014

Display # 
Title Modified Date Hits
Black Pearl Awards EURORDIS 12 October 2017 37340
countdown to Rare Disease Day 2015 22 December 2014 31868
A need for cultural change… 10 December 2014 39344
WHO Public Disclosure of Clinical Trial Results 05 November 2014 45911
EMA: Clinical trial data will be shared 05 November 2014 39829
Automated search tools to retrieve published rare disease cases 05 November 2014 43064
10 Key Principles of RD Registries 05 November 2014 29033
8th BIC 2014 03 October 2014 36052
III International EPIRARE workshop 18 September 2014 40874
revoking exclusive haemophilia treatment market 18 September 2014 39220
the RD-Connect platform 18 September 2014 42663
Rare Disease Help Lines 01 July 2014 43318
IRDiRC 01 July 2014 44838
Study underscores public demand for rare disease help lines 01 July 2014 45400
reference guide for registry management 17 June 2014 42782
8th Annual Congress EAHAD 2015 17 June 2014 35327
Rare diseases and orphan drug registries 14 May 2014 41443
Computer algorithms for rare disease 14 May 2014 43647
None of us are protected by statistics. 09 May 2014 31212
ICORD 2014 07 May 2014 33123
Establishment of a vasculitis registry in Poland 16 April 2014 34485
Nature: Pediatric requirements in Europe stymie help for hemophilia 19 April 2014 33560
Yale University Open Data Access Project (YODA) 21 February 2014 42697
Next Generation Sequencing 01 February 2014 42116
Rare Disease Day 2014 01 February 2014 32793
Researchers appeal to the British public to share their medical data 01 February 2014 45094
Rare Disorders in Norway 01 February 2014 39338
Rare Diseases in Brazil 01 February 2014 36985
recombinant Factor IX Fc 01 February 2014 31643
Welcome to the Rare Coagulation Disorders Resource Room! 18 January 2014 34790
new website 14 January 2014 32890
ECRD 2014 16 April 2014 38092