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news 2020
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Title
Modified Date
Hits
COVID-19 and Rare Diseases
18 December 2020
31967
Slovenia rare disease registry
07 October 2020
31518
ERN-EuroBloodNet’s
07 October 2020
31795
ISTH President 2022-2024
07 October 2020
34476
FDA register to collect information from rare disease community
04 August 2020
31304
FAIRification of patient registries
04 August 2020
33665
rare diseases in India
04 August 2020
33738
IthaScore, a gene-ranking metric for haemoglobinopathy-specific phenotypes
26 June 2020
33021
COVID-19 & Rare Diseases
14 May 2020
31959
ECRD 2020
14 May 2020
33301
Interview with new EAHAD President
24 April 2020
31690
Cancellation of the WFH 2020 World Congress
09 April 2020
32354
WFH Webinar: Bleeding Disorders and COVID-19
09 April 2020
29631
ISTH 2020 Congress Meeting Cancellation
09 April 2020
28796
ISTH Appoints Flora Peyvandi as President for 2022-2024
18 February 2020
33295
eahad2020
12 February 2020
32263
How many rare diseases are there?
18 January 2020
32803
Implementation of integrated care for rare disease patients
18 January 2020
32185
Increasing our Understanding of Plasminogen Deficiency
30 January 2020
31981
Japan: Elaboration of a data integration platform for rare disease research
18 January 2020
32860
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