RBDD rare bleeding disorders database
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news 2020

Display # 
Title Modified Date Hits
COVID-19 and Rare Diseases 18 December 2020 38885
Slovenia rare disease registry 07 October 2020 37476
ERN-EuroBloodNet’s 07 October 2020 37818
ISTH President 2022-2024 07 October 2020 44057
FDA register to collect information from rare disease community 04 August 2020 38598
FAIRification of patient registries 04 August 2020 42840
rare diseases in India 04 August 2020 41785
IthaScore, a gene-ranking metric for haemoglobinopathy-specific phenotypes 26 June 2020 42282
COVID-19 & Rare Diseases 14 May 2020 38755
ECRD 2020 14 May 2020 40739
Interview with new EAHAD President 24 April 2020 39205
Cancellation of the WFH 2020 World Congress 09 April 2020 41110
WFH Webinar: Bleeding Disorders and COVID-19 09 April 2020 35347
ISTH 2020 Congress Meeting Cancellation 09 April 2020 33567
ISTH Appoints Flora Peyvandi as President for 2022-2024 18 February 2020 42782
eahad2020 12 February 2020 38483
How many rare diseases are there? 18 January 2020 41504
Implementation of integrated care for rare disease patients 18 January 2020 41549
Increasing our Understanding of Plasminogen Deficiency 30 January 2020 40637
Japan: Elaboration of a data integration platform for rare disease research 18 January 2020 42406
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