RBDD rare bleeding disorders database
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news 2020

Display # 
Title Modified Date Hits
COVID-19 and Rare Diseases 18 December 2020 31967
Slovenia rare disease registry 07 October 2020 31518
ERN-EuroBloodNet’s 07 October 2020 31795
ISTH President 2022-2024 07 October 2020 34476
FDA register to collect information from rare disease community 04 August 2020 31304
FAIRification of patient registries 04 August 2020 33665
rare diseases in India 04 August 2020 33738
IthaScore, a gene-ranking metric for haemoglobinopathy-specific phenotypes 26 June 2020 33021
COVID-19 & Rare Diseases 14 May 2020 31959
ECRD 2020 14 May 2020 33301
Interview with new EAHAD President 24 April 2020 31690
Cancellation of the WFH 2020 World Congress 09 April 2020 32354
WFH Webinar: Bleeding Disorders and COVID-19 09 April 2020 29631
ISTH 2020 Congress Meeting Cancellation 09 April 2020 28796
ISTH Appoints Flora Peyvandi as President for 2022-2024 18 February 2020 33295
eahad2020 12 February 2020 32263
How many rare diseases are there? 18 January 2020 32803
Implementation of integrated care for rare disease patients 18 January 2020 32185
Increasing our Understanding of Plasminogen Deficiency 30 January 2020 31981
Japan: Elaboration of a data integration platform for rare disease research 18 January 2020 32860
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