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news 2020
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Title
Modified Date
Hits
COVID-19 and Rare Diseases
18 December 2020
38885
Slovenia rare disease registry
07 October 2020
37476
ERN-EuroBloodNet’s
07 October 2020
37818
ISTH President 2022-2024
07 October 2020
44057
FDA register to collect information from rare disease community
04 August 2020
38598
FAIRification of patient registries
04 August 2020
42840
rare diseases in India
04 August 2020
41785
IthaScore, a gene-ranking metric for haemoglobinopathy-specific phenotypes
26 June 2020
42282
COVID-19 & Rare Diseases
14 May 2020
38755
ECRD 2020
14 May 2020
40739
Interview with new EAHAD President
24 April 2020
39205
Cancellation of the WFH 2020 World Congress
09 April 2020
41110
WFH Webinar: Bleeding Disorders and COVID-19
09 April 2020
35347
ISTH 2020 Congress Meeting Cancellation
09 April 2020
33567
ISTH Appoints Flora Peyvandi as President for 2022-2024
18 February 2020
42782
eahad2020
12 February 2020
38483
How many rare diseases are there?
18 January 2020
41504
Implementation of integrated care for rare disease patients
18 January 2020
41549
Increasing our Understanding of Plasminogen Deficiency
30 January 2020
40637
Japan: Elaboration of a data integration platform for rare disease research
18 January 2020
42406
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