news 2023

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Title Modified Date Hits
Registries Symposium 2024 09 January 2024 22585
Artificial intelligence and rare diseases 30 November 2023 20671
Neurological Complications Associated with Hereditary Bleeding Disorders 26 October 2023 21886
A creative approach to managing a case of haemophilia A 26 October 2023 21432
ISTH draft hemophilia guideline 23 October 2023 22685
CHESS II study 16 October 2023 22941
Accessibility of services for neuromuscular disorders in Zambia 16 October 2023 17379
CDISC Data Standards for Rare Disease 12 October 2023 22508
2023 NORD Breakthrough Summit 12 October 2023 22039
ERN 5th Progress Meeting 29 September 2023 20384
Bleeding patients on extracorporeal membrane oxygenation 25 September 2023 20145
12 BIC Palermo 11 September 2023 26219
State of the art for ISTH Society 28 June 2023 35662
The Impact of Artificial Intelligence in the Odyssey of Rare Diseases 23 June 2023 26469
Diagnosis of von Willebrand disease 01 June 2023 24382
Innovative Health Initiative 16 May 2023 26600
US: The future of market exclusivity 16 May 2023 29398
solve-rd 16 May 2023 29642
12 BIC International Conference 11 September 2023 28920
Online registry building: Guidance for patient organisations 28 April 2023 27823
Australia: Moving towards a more sustainable rare disease workforce 28 April 2023 28932
ERN-EuroBloodNet: New online educational program 28 April 2023 25452
EuroBloodNet: Sickle Cell Disease research 28 April 2023 24322
ISTH 2023 Montreal 13 April 2023 32054
haemophilia: a breakthrough drug with many unknowns 05 April 2023 30491
von Willebrand factor 05 April 2023 27123
research priorities for ultra-rare inherited bleeding disorders 18 March 2023 30817
costs of rare diseases in Hong Kong 15 March 2023 28306
EuroBloodNet 15 March 2023 30900
ERKNet: New patient website 15 March 2023 29852
COVID-19 and coagulopathy 13 March 2023 27920
Rare Disease Day 2023 28 February 2023 28170
Care4Rare Canada 15 February 2023 31812
Mild and Moderate Hemophilia A: Neglected Conditions, Still with Unmet Needs 14 February 2023 26790
Hemorrhagic and thrombotic adverse events associated with emicizumab 01 February 2023 26669
Involvement of the contact pathway in COVID-19 coagulopathy 04 January 2023 28268
ISTH Bangkok 2024 27 April 2023 32855
EAHAD 2023 16 December 2022 31415
EJP RD: New video on rare diseases for ASHG TV 02 November 2022 25139
RDDC & NORD announce new partnership 02 November 2022 23182