news 2023

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Title Modified Date Hits
Registries Symposium 2024 09 January 2024 32145
Artificial intelligence and rare diseases 30 November 2023 28266
Neurological Complications Associated with Hereditary Bleeding Disorders 26 October 2023 31242
A creative approach to managing a case of haemophilia A 26 October 2023 30179
ISTH draft hemophilia guideline 23 October 2023 32373
CHESS II study 16 October 2023 32412
Accessibility of services for neuromuscular disorders in Zambia 16 October 2023 21540
CDISC Data Standards for Rare Disease 12 October 2023 32109
2023 NORD Breakthrough Summit 12 October 2023 31752
ERN 5th Progress Meeting 29 September 2023 27349
Bleeding patients on extracorporeal membrane oxygenation 25 September 2023 27283
12 BIC Palermo 11 September 2023 34401
State of the art for ISTH Society 28 June 2023 45616
The Impact of Artificial Intelligence in the Odyssey of Rare Diseases 23 June 2023 34958
Diagnosis of von Willebrand disease 01 June 2023 29422
Innovative Health Initiative 16 May 2023 33598
US: The future of market exclusivity 16 May 2023 39088
solve-rd 16 May 2023 39589
12 BIC International Conference 11 September 2023 37783
Online registry building: Guidance for patient organisations 28 April 2023 36139
Australia: Moving towards a more sustainable rare disease workforce 28 April 2023 35762
ERN-EuroBloodNet: New online educational program 28 April 2023 31164
EuroBloodNet: Sickle Cell Disease research 28 April 2023 33216
ISTH 2023 Montreal 13 April 2023 42224
haemophilia: a breakthrough drug with many unknowns 05 April 2023 40113
von Willebrand factor 05 April 2023 32481
research priorities for ultra-rare inherited bleeding disorders 18 March 2023 40491
costs of rare diseases in Hong Kong 15 March 2023 34679
EuroBloodNet 15 March 2023 39232
ERKNet: New patient website 15 March 2023 38009
COVID-19 and coagulopathy 13 March 2023 34067
Rare Disease Day 2023 28 February 2023 33363
Care4Rare Canada 15 February 2023 41340
Mild and Moderate Hemophilia A: Neglected Conditions, Still with Unmet Needs 14 February 2023 32458
Hemorrhagic and thrombotic adverse events associated with emicizumab 01 February 2023 31851
Involvement of the contact pathway in COVID-19 coagulopathy 04 January 2023 34820
ISTH Bangkok 2024 27 April 2023 43004
EAHAD 2023 16 December 2022 39358
EJP RD: New video on rare diseases for ASHG TV 02 November 2022 30643
RDDC & NORD announce new partnership 02 November 2022 31382