EU health wiki
The European Commission’s new Health in Europe: Information and Data Interface (HEIDI) tool includes a section for rare diseases
Heidi (Health in Europe: Information and Data Interface) is a recently developed internet-based wiki tool specifically designed for European health information and data. Emerging from two former EC Public Health Programme projects (the Eugloreh report and EUPhix) Heidi offers articles and data on health status, diseases, determinants, health systems and policies, trends, institutional and policy aspects, and more. There is a special section for rare diseases available via the Contents tab. Data can be accessed by employing either search or browse functions. The information contained in Heidi, presented in the form of texts, tables, graphs, charts, and maps, is provided by various health professionals. Experts are called upon to contribute their expertise by becoming editors for Heidi. It is hoped that this new information tool can help develop evidence-based policies to improve the health of Europeans.