A dynamic, open-access website on rare coagulation disorders
 
The Rare Coagulation Disorders Resource Room, an extension of the RBDD Registry (http://www.rbdd.org/), was developed in collaboration with the Indiana Hemophilia & Thrombosis Center (www.ihtc.org), and the Rare Coagulation Disorders Subcommittee of the National Hemophilia Foundation (NHF), a group appointed by NHF’s Medical and Scientific Advisory Council. 
The Resource Room serves as a platform for promoting international collaboration to increase knowledge of these very rare disorders and to improve the care of affected individuals.

http://www.rarecoagulationdisorders.org