There are now 10 different centres for rare disorders in Norway. They cover a broad range of diagnoses and diagnostic groups. The Norwegian Ministry for Health and care services decided to organise these centres under one national service for rare disorders. In 2013, Oslo University Hospital organised a project to establish a brand new national service, which is in function from January 2014. Now there is one National Advisory Unit on Rare Disorders (NAURD) in Norway, which oversees the ten other centres. The purpose of this co- organisation is enhanced quality of services through strengthened user participation, better coordination and cooperation, better visibility, services for more rare diagnoses and greater efficiency. The new service, NAURD, is lead by Stein Are Aksnes which will also have a web-site, which will operate the Norwegian Help-Line on Rare Disorders (+47 800 41 710). For more information and links to the different Centres for Rare Disorders visit the website 
Rare Disorders in Norway
New organization of services on Rare Disorders in Norway
There are now 10 different centres for rare disorders in Norway. They cover a broad range of diagnoses and diagnostic groups. The Norwegian Ministry for Health and care services decided to organise these centres under one national service for rare disorders. In 2013, Oslo University Hospital organised a project to establish a brand new national service, which is in function from January 2014. Now there is one National Advisory Unit on Rare Disorders (NAURD) in Norway, which oversees the ten other centres. The purpose of this co- organisation is enhanced quality of services through strengthened user participation, better coordination and cooperation, better visibility, services for more rare diagnoses and greater efficiency. The new service, NAURD, is lead by Stein Are Aksnes which will also have a web-site, which will operate the Norwegian Help-Line on Rare Disorders (+47 800 41 710). For more information and links to the different Centres for Rare Disorders visit the website ©2024 RBDD rare bleeding disorders database