The European Network of Rare Disease Help Lines (ENRDHLs) was created by EURORDIS and partners in order to provide support and share experience and information between national or disease specific help lines across Europe.
EURORDIS, on behalf of the European Network of Rare Diseases Help Lines, has asked the European Commission DG Connect to reserve a unique six digit 116 phone number for help lines for rare diseases across Europe. If this is accepted, European citizens from all Member States, and patients and families in particular, will have one single number to dial wherever they are in Europe every time they need support or information on rare diseases.
