Rare Disease Day 2016
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- Category: news 2016
This Rare Disease Day join hands with the community worldwide to make the patient voice heard
On 29 February patients around the world will celebrate the ninth annual Rare Disease Day. People living with a rare disease and their families, patient organisations, politicians, carers, medical professionals, researchers and industry will come together in solidarity to raise awareness of rare diseases. It will also be a day of reflection to acknowledge how much more can be achieved if we work collectively.
This is a patient-led campaign which was started in 2008 by patient organisations which included mostly European countries. It has now expanded cumulatively, with over 80 countries and regions participating in Rare Disease Day 2016. This year Uganda and Indonesia are making their debut among others, by holding their own local events.