European Conference for RD

With over 760 attendees from over 40 countries, the European Conference for Rare Diseases was more than a grand success. This was one conference, which truly represented all stakeholders of rare diseases and especially the concerns of the patients and the families. It presented how old problems have been tackled and new challenges are being looked at. An inspiring 2 days, and an additional day for pre-conference tutorials, that brought us back with renewed motivation and vigour.

During the opening plenary, the young patient advocates panel (pictured below) brought together six representatives, from different countries across Europe and around the world to take to the stage and share their unique perspectives about the future of patient advocacy and how young people are creating change in the field of rare diseases.