A one-stop shop style service designed for people living with rare diseases and their carers.
Resource centres for rare diseases are a one-stop shop service, complementary to health and social care services, specifically designed for people living with a rare disease and their carers. Resource centres provide holistic services and support, while also creating a bridge between patients and families and various stakeholders, services and professionals providing health care, social care, and social support – including rehabilitation, education and employment.
