news 2014

Display # 
Title Modified Date Hits
Black Pearl Awards EURORDIS 12 October 2017 37694
countdown to Rare Disease Day 2015 22 December 2014 32006
A need for cultural change… 10 December 2014 39600
WHO Public Disclosure of Clinical Trial Results 05 November 2014 46215
EMA: Clinical trial data will be shared 05 November 2014 40092
Automated search tools to retrieve published rare disease cases 05 November 2014 43408
10 Key Principles of RD Registries 05 November 2014 29194
8th BIC 2014 03 October 2014 36242
III International EPIRARE workshop 18 September 2014 41159
revoking exclusive haemophilia treatment market 18 September 2014 39486
the RD-Connect platform 18 September 2014 43013
Rare Disease Help Lines 01 July 2014 43700
IRDiRC 01 July 2014 45168
Study underscores public demand for rare disease help lines 01 July 2014 45710
reference guide for registry management 17 June 2014 43129
8th Annual Congress EAHAD 2015 17 June 2014 35498
Rare diseases and orphan drug registries 14 May 2014 41803
Computer algorithms for rare disease 14 May 2014 44005
None of us are protected by statistics. 09 May 2014 31420
ICORD 2014 07 May 2014 33349
Establishment of a vasculitis registry in Poland 16 April 2014 34679
Nature: Pediatric requirements in Europe stymie help for hemophilia 19 April 2014 33736
Yale University Open Data Access Project (YODA) 21 February 2014 43043
Next Generation Sequencing 01 February 2014 42472
Rare Disease Day 2014 01 February 2014 32947
Researchers appeal to the British public to share their medical data 01 February 2014 45413
Rare Disorders in Norway 01 February 2014 39581
Rare Diseases in Brazil 01 February 2014 37213
recombinant Factor IX Fc 01 February 2014 31776
Welcome to the Rare Coagulation Disorders Resource Room! 18 January 2014 34995
new website 14 January 2014 33147
ECRD 2014 16 April 2014 38355