news 2014

Display # 
Title Modified Date Hits
Black Pearl Awards EURORDIS 12 October 2017 25655
countdown to Rare Disease Day 2015 22 December 2014 27018
A need for cultural change… 10 December 2014 30042
WHO Public Disclosure of Clinical Trial Results 05 November 2014 34911
EMA: Clinical trial data will be shared 05 November 2014 30101
Automated search tools to retrieve published rare disease cases 05 November 2014 31400
10 Key Principles of RD Registries 05 November 2014 22759
8th BIC 2014 03 October 2014 29312
III International EPIRARE workshop 18 September 2014 30560
revoking exclusive haemophilia treatment market 18 September 2014 29934
the RD-Connect platform 18 September 2014 30862
Rare Disease Help Lines 01 July 2014 31691
IRDiRC 01 July 2014 33454
Study underscores public demand for rare disease help lines 01 July 2014 34675
reference guide for registry management 17 June 2014 31237
8th Annual Congress EAHAD 2015 17 June 2014 28703
Rare diseases and orphan drug registries 14 May 2014 30587
Computer algorithms for rare disease 14 May 2014 31642
None of us are protected by statistics. 09 May 2014 23666
ICORD 2014 07 May 2014 25056
Establishment of a vasculitis registry in Poland 16 April 2014 27835
Nature: Pediatric requirements in Europe stymie help for hemophilia 19 April 2014 27261
Yale University Open Data Access Project (YODA) 21 February 2014 31400
Next Generation Sequencing 01 February 2014 30679
Rare Disease Day 2014 01 February 2014 27809
Researchers appeal to the British public to share their medical data 01 February 2014 34378
Rare Disorders in Norway 01 February 2014 30230
Rare Diseases in Brazil 01 February 2014 28985
recombinant Factor IX Fc 01 February 2014 26829
Welcome to the Rare Coagulation Disorders Resource Room! 18 January 2014 26606
new website 14 January 2014 24357
ECRD 2014 16 April 2014 29426