news 2014

Display # 
Title Modified Date Hits
Black Pearl Awards EURORDIS 12 October 2017 5619
countdown to Rare Disease Day 2015 22 December 2014 9631
A need for cultural changeā€¦ 10 December 2014 9845
WHO Public Disclosure of Clinical Trial Results 05 November 2014 9722
EMA: Clinical trial data will be shared 05 November 2014 9896
Automated search tools to retrieve published rare disease cases 05 November 2014 9819
10 Key Principles of RD Registries 05 November 2014 6237
8th BIC 2014 03 October 2014 10137
III International EPIRARE workshop 18 September 2014 9892
revoking exclusive haemophilia treatment market 18 September 2014 9917
the RD-Connect platform 18 September 2014 9503
Rare Disease Help Lines 01 July 2014 10029
IRDiRC 01 July 2014 10256
Study underscores public demand for rare disease help lines 01 July 2014 9842
reference guide for registry management 17 June 2014 9825
8th Annual Congress EAHAD 2015 17 June 2014 10412
Rare diseases and orphan drug registries 14 May 2014 9640
Computer algorithms for rare disease 14 May 2014 9843
None of us are protected by statistics. 09 May 2014 6217
ICORD 2014 07 May 2014 6237
Establishment of a vasculitis registry in Poland 16 April 2014 9652
Nature: Pediatric requirements in Europe stymie help for hemophilia 19 April 2014 9601
Yale University Open Data Access Project (YODA) 21 February 2014 9644
Next Generation Sequencing 01 February 2014 9359
Rare Disease Day 2014 01 February 2014 9917
Researchers appeal to the British public to share their medical data 01 February 2014 9560
Rare Disorders in Norway 01 February 2014 9915
Rare Diseases in Brazil 01 February 2014 9555
recombinant Factor IX Fc 01 February 2014 9251
Welcome to the Rare Coagulation Disorders Resource Room! 18 January 2014 7694
new website 14 January 2014 4894
ECRD 2014 16 April 2014 8132