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news 2014
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Title
Modified Date
Hits
Black Pearl Awards EURORDIS
12 October 2017
5619
countdown to Rare Disease Day 2015
22 December 2014
9631
A need for cultural changeā¦
10 December 2014
9845
WHO Public Disclosure of Clinical Trial Results
05 November 2014
9722
EMA: Clinical trial data will be shared
05 November 2014
9896
Automated search tools to retrieve published rare disease cases
05 November 2014
9819
10 Key Principles of RD Registries
05 November 2014
6237
8th BIC 2014
03 October 2014
10137
III International EPIRARE workshop
18 September 2014
9892
revoking exclusive haemophilia treatment market
18 September 2014
9917
the RD-Connect platform
18 September 2014
9503
Rare Disease Help Lines
01 July 2014
10029
IRDiRC
01 July 2014
10256
Study underscores public demand for rare disease help lines
01 July 2014
9842
reference guide for registry management
17 June 2014
9825
8th Annual Congress EAHAD 2015
17 June 2014
10412
Rare diseases and orphan drug registries
14 May 2014
9640
Computer algorithms for rare disease
14 May 2014
9843
None of us are protected by statistics.
09 May 2014
6217
ICORD 2014
07 May 2014
6237
Establishment of a vasculitis registry in Poland
16 April 2014
9652
Nature: Pediatric requirements in Europe stymie help for hemophilia
19 April 2014
9601
Yale University Open Data Access Project (YODA)
21 February 2014
9644
Next Generation Sequencing
01 February 2014
9359
Rare Disease Day 2014
01 February 2014
9917
Researchers appeal to the British public to share their medical data
01 February 2014
9560
Rare Disorders in Norway
01 February 2014
9915
Rare Diseases in Brazil
01 February 2014
9555
recombinant Factor IX Fc
01 February 2014
9251
Welcome to the Rare Coagulation Disorders Resource Room!
18 January 2014
7694
new website
14 January 2014
4894
ECRD 2014
16 April 2014
8132
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