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news 2020
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Title
Modified Date
Hits
COVID-19 and Rare Diseases
18 December 2020
31142
Slovenia rare disease registry
07 October 2020
30846
ERN-EuroBloodNet’s
07 October 2020
31171
ISTH President 2022-2024
07 October 2020
33247
FDA register to collect information from rare disease community
04 August 2020
30424
FAIRification of patient registries
04 August 2020
32552
rare diseases in India
04 August 2020
32729
IthaScore, a gene-ranking metric for haemoglobinopathy-specific phenotypes
26 June 2020
31865
COVID-19 & Rare Diseases
14 May 2020
31152
ECRD 2020
14 May 2020
32384
Interview with new EAHAD President
24 April 2020
30704
Cancellation of the WFH 2020 World Congress
09 April 2020
31230
WFH Webinar: Bleeding Disorders and COVID-19
09 April 2020
28979
ISTH 2020 Congress Meeting Cancellation
09 April 2020
28238
ISTH Appoints Flora Peyvandi as President for 2022-2024
18 February 2020
32095
eahad2020
12 February 2020
31562
How many rare diseases are there?
18 January 2020
31715
Implementation of integrated care for rare disease patients
18 January 2020
30946
Increasing our Understanding of Plasminogen Deficiency
30 January 2020
30904
Japan: Elaboration of a data integration platform for rare disease research
18 January 2020
31619
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