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clip
news 2020
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Title
Modified Date
Hits
COVID-19 and Rare Diseases
18 December 2020
10549
Slovenia rare disease registry
07 October 2020
10906
ERN-EuroBloodNet’s
07 October 2020
11023
ISTH President 2022-2024
07 October 2020
10478
FDA register to collect information from rare disease community
04 August 2020
10613
FAIRification of patient registries
04 August 2020
10797
rare diseases in India
04 August 2020
10752
IthaScore, a gene-ranking metric for haemoglobinopathy-specific phenotypes
26 June 2020
10523
COVID-19 & Rare Diseases
14 May 2020
10632
ECRD 2020
14 May 2020
10676
Interview with new EAHAD President
24 April 2020
10152
Cancellation of the WFH 2020 World Congress
09 April 2020
9934
WFH Webinar: Bleeding Disorders and COVID-19
09 April 2020
9757
ISTH 2020 Congress Meeting Cancellation
09 April 2020
9797
ISTH Appoints Flora Peyvandi as President for 2022-2024
18 February 2020
10075
eahad2020
12 February 2020
10220
How many rare diseases are there?
18 January 2020
10355
Implementation of integrated care for rare disease patients
18 January 2020
9635
Increasing our Understanding of Plasminogen Deficiency
30 January 2020
9886
Japan: Elaboration of a data integration platform for rare disease research
18 January 2020
9752
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