RBDs
Definition
Clinical manifestation
Phenotype
Genotype
Genotype-Phenotype correlation
Treatment
History
About us
the team
Partners
Studies
WRBD
PRO-RBDD
EN-RBD
PLG-rbdd
Contact
News
news
scientific papers
clip
news 2021
Display #
5
10
15
20
25
30
50
100
All
Title
Modified Date
Hits
World Orphan Drug Congress 2021
17 November 2021
11746
The de novo FAIRification process of a registry for vascular anomalies
13 November 2021
11396
Patient preferences for gene therapy in haemophilia
21 October 2021
11270
Role of ADAMTS13, VWF and F8 genes in deep vein thrombosis
21 October 2021
11240
11th BIC International Conference
15 September 2021
12155
Share4Rare
16 June 2021
12511
EJP-RD : Online course on diagnosing rare diseases from the clinic to research and back
16 June 2021
12299
Data Standards Strategy survey
10 May 2021
11430
Thrombotic microangiopathies webinars
10 May 2021
11135
EAHAD 2021
11 February 2021
12496
EJP-RD call for innovation
22 January 2021
11902
Rare Digital Disease Day 2021 in Europe
18 December 2020
14486
Rare Digital Disease Day 2021
16 February 2021
12731
Rare Disease Day 2021
16 February 2021
8468
©2024 RBDD rare bleeding disorders database