RBDD rare bleeding disorders database
  • Home
  • RBDs
    • Definition
    • Clinical manifestation
    • Phenotype
    • Genotype
    • Genotype-Phenotype correlation
    • Treatment
  • History
  • About us
    • the team
    • Partners
  • Studies
    • WRBD
    • PRO-RBDD
    • EN-RBD
    • PLG-rbdd
  • Contact
  • News
    • news
    • scientific papers
    • clip

news 2021

Display # 
Title Modified Date Hits
World Orphan Drug Congress 2021 17 November 2021 33355
The de novo FAIRification process of a registry for vascular anomalies 13 November 2021 30862
Patient preferences for gene therapy in haemophilia 21 October 2021 32428
Role of ADAMTS13, VWF and F8 genes in deep vein thrombosis 21 October 2021 29534
11th BIC International Conference 15 September 2021 33633
Share4Rare 16 June 2021 35351
EJP-RD : Online course on diagnosing rare diseases from the clinic to research and back 16 June 2021 31900
Data Standards Strategy survey 10 May 2021 33540
Thrombotic microangiopathies webinars 10 May 2021 32760
EAHAD 2021 11 February 2021 33311
EJP-RD call for innovation 22 January 2021 30246
Rare Digital Disease Day 2021 in Europe 18 December 2020 33305
Rare Digital Disease Day 2021 16 February 2021 31067
Rare Disease Day 2021 16 February 2021 26530
©2025 RBDD rare bleeding disorders database