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news 2023
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Title
Modified Date
Hits
Registries Symposium 2024
09 January 2024
922
Artificial intelligence and rare diseases
30 November 2023
991
Neurological Complications Associated with Hereditary Bleeding Disorders
26 October 2023
1079
A creative approach to managing a case of haemophilia A
26 October 2023
1069
ISTH draft hemophilia guideline
23 October 2023
1123
CHESS II study
16 October 2023
1019
Accessibility of services for neuromuscular disorders in Zambia
16 October 2023
940
CDISC Data Standards for Rare Disease
12 October 2023
1016
2023 NORD Breakthrough Summit
12 October 2023
990
ERN 5th Progress Meeting
29 September 2023
1104
Bleeding patients on extracorporeal membrane oxygenation
25 September 2023
1104
12 BIC Palermo
11 September 2023
4173
State of the art for ISTH Society
28 June 2023
4531
The Impact of Artificial Intelligence in the Odyssey of Rare Diseases
23 June 2023
4424
Diagnosis of von Willebrand disease
01 June 2023
4793
Innovative Health Initiative
16 May 2023
5146
US: The future of market exclusivity
16 May 2023
5249
solve-rd
16 May 2023
4956
12 BIC International Conference
11 September 2023
5726
Online registry building: Guidance for patient organisations
28 April 2023
5590
Australia: Moving towards a more sustainable rare disease workforce
28 April 2023
5499
ERN-EuroBloodNet: New online educational program
28 April 2023
5389
EuroBloodNet: Sickle Cell Disease research
28 April 2023
3030
ISTH 2023 Montreal
13 April 2023
6373
haemophilia: a breakthrough drug with many unknowns
05 April 2023
6447
von Willebrand factor
05 April 2023
6441
research priorities for ultra-rare inherited bleeding disorders
18 March 2023
6648
costs of rare diseases in Hong Kong
15 March 2023
6663
EuroBloodNet
15 March 2023
6608
ERKNet: New patient website
15 March 2023
6498
COVID-19 and coagulopathy
13 March 2023
6511
Rare Disease Day 2023
28 February 2023
7420
Care4Rare Canada
15 February 2023
6867
Mild and Moderate Hemophilia A: Neglected Conditions, Still with Unmet Needs
14 February 2023
6729
Hemorrhagic and thrombotic adverse events associated with emicizumab
01 February 2023
6820
Involvement of the contact pathway in COVID-19 coagulopathy
04 January 2023
7364
ISTH Bangkok 2024
27 April 2023
7738
EAHAD 2023
16 December 2022
7682
EJP RD: New video on rare diseases for ASHG TV
02 November 2022
4749
RDDC & NORD announce new partnership
02 November 2022
2738
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