news 2023

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Title Modified Date Hits
Registries Symposium 2024 09 January 2024 21405
Artificial intelligence and rare diseases 30 November 2023 19759
Neurological Complications Associated with Hereditary Bleeding Disorders 26 October 2023 20655
A creative approach to managing a case of haemophilia A 26 October 2023 20270
ISTH draft hemophilia guideline 23 October 2023 21482
CHESS II study 16 October 2023 21763
Accessibility of services for neuromuscular disorders in Zambia 16 October 2023 16942
CDISC Data Standards for Rare Disease 12 October 2023 21285
2023 NORD Breakthrough Summit 12 October 2023 20818
ERN 5th Progress Meeting 29 September 2023 19580
Bleeding patients on extracorporeal membrane oxygenation 25 September 2023 19228
12 BIC Palermo 11 September 2023 25084
State of the art for ISTH Society 28 June 2023 34419
The Impact of Artificial Intelligence in the Odyssey of Rare Diseases 23 June 2023 25357
Diagnosis of von Willebrand disease 01 June 2023 23842
Innovative Health Initiative 16 May 2023 25823
US: The future of market exclusivity 16 May 2023 28128
solve-rd 16 May 2023 28424
12 BIC International Conference 11 September 2023 27704
Online registry building: Guidance for patient organisations 28 April 2023 26789
Australia: Moving towards a more sustainable rare disease workforce 28 April 2023 28158
ERN-EuroBloodNet: New online educational program 28 April 2023 24849
EuroBloodNet: Sickle Cell Disease research 28 April 2023 23209
ISTH 2023 Montreal 13 April 2023 30803
haemophilia: a breakthrough drug with many unknowns 05 April 2023 29243
von Willebrand factor 05 April 2023 26606
research priorities for ultra-rare inherited bleeding disorders 18 March 2023 29570
costs of rare diseases in Hong Kong 15 March 2023 27610
EuroBloodNet 15 March 2023 29791
ERKNet: New patient website 15 March 2023 28857
COVID-19 and coagulopathy 13 March 2023 27220
Rare Disease Day 2023 28 February 2023 27621
Care4Rare Canada 15 February 2023 30612
Mild and Moderate Hemophilia A: Neglected Conditions, Still with Unmet Needs 14 February 2023 26134
Hemorrhagic and thrombotic adverse events associated with emicizumab 01 February 2023 26144
Involvement of the contact pathway in COVID-19 coagulopathy 04 January 2023 27501
ISTH Bangkok 2024 27 April 2023 31600
EAHAD 2023 16 December 2022 30370
EJP RD: New video on rare diseases for ASHG TV 02 November 2022 24503
RDDC & NORD announce new partnership 02 November 2022 22008