news 2023

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Title Modified Date Hits
Registries Symposium 2024 09 January 2024 922
Artificial intelligence and rare diseases 30 November 2023 991
Neurological Complications Associated with Hereditary Bleeding Disorders 26 October 2023 1079
A creative approach to managing a case of haemophilia A 26 October 2023 1069
ISTH draft hemophilia guideline 23 October 2023 1123
CHESS II study 16 October 2023 1019
Accessibility of services for neuromuscular disorders in Zambia 16 October 2023 940
CDISC Data Standards for Rare Disease 12 October 2023 1016
2023 NORD Breakthrough Summit 12 October 2023 990
ERN 5th Progress Meeting 29 September 2023 1104
Bleeding patients on extracorporeal membrane oxygenation 25 September 2023 1104
12 BIC Palermo 11 September 2023 4173
State of the art for ISTH Society 28 June 2023 4531
The Impact of Artificial Intelligence in the Odyssey of Rare Diseases 23 June 2023 4424
Diagnosis of von Willebrand disease 01 June 2023 4793
Innovative Health Initiative 16 May 2023 5146
US: The future of market exclusivity 16 May 2023 5249
solve-rd 16 May 2023 4956
12 BIC International Conference 11 September 2023 5726
Online registry building: Guidance for patient organisations 28 April 2023 5590
Australia: Moving towards a more sustainable rare disease workforce 28 April 2023 5499
ERN-EuroBloodNet: New online educational program 28 April 2023 5389
EuroBloodNet: Sickle Cell Disease research 28 April 2023 3030
ISTH 2023 Montreal 13 April 2023 6373
haemophilia: a breakthrough drug with many unknowns 05 April 2023 6447
von Willebrand factor 05 April 2023 6441
research priorities for ultra-rare inherited bleeding disorders 18 March 2023 6648
costs of rare diseases in Hong Kong 15 March 2023 6663
EuroBloodNet 15 March 2023 6608
ERKNet: New patient website 15 March 2023 6498
COVID-19 and coagulopathy 13 March 2023 6511
Rare Disease Day 2023 28 February 2023 7420
Care4Rare Canada 15 February 2023 6867
Mild and Moderate Hemophilia A: Neglected Conditions, Still with Unmet Needs 14 February 2023 6729
Hemorrhagic and thrombotic adverse events associated with emicizumab 01 February 2023 6820
Involvement of the contact pathway in COVID-19 coagulopathy 04 January 2023 7364
ISTH Bangkok 2024 27 April 2023 7738
EAHAD 2023 16 December 2022 7682
EJP RD: New video on rare diseases for ASHG TV 02 November 2022 4749
RDDC & NORD announce new partnership 02 November 2022 2738